Through public policy, legal advocacy and grassroots engagement at the local, state and federal levels, the Foundation raises awareness about the epilepsies and issues affecting the epilepsy community and seeks positive change.

Our advocacy priorities include:

  • Ensuring access to quality health care that is affordable, physician-directed and person-centered;
  • Ending epilepsy-related discrimination and protecting the rights of people with disabilities;
  • Raising awareness and promoting education about the epilepsies; and
  • Fostering biomedical innovation through incentivizing development of new therapies and the promotion of research to gain a better understanding of causes, consequences, and outcomes, and, ultimately, cures for all the epilepsies.

These types of policies are constantly being considered, reviewed and put in place and affect people with the epilepsies and the broader epilepsy community. The best way to make sure that your needs are considered in these decisions is through advocacy—by sharing your story and explaining how these policies would affect you.

You are the expert – you know first-hand the challenges that come from living with epilepsy. Your experiences help inform your story. Without speaking up and telling your story, elected officials may never know what epilepsy is, what living with epilepsy is like or even know that an issue is important to you. The Epilepsy Foundation is here to support you with the tools and resources you need to be an effective advocate.

Join our Speak Up Speak Out advocacy network and help us raise awareness with public officials about the public policy issues important to the epilepsy community.

Authored Date: 
Thursday, September 19, 2019